I have just finished a conversation with one of the top people at the Marsden and it seems that the problems that I am having are consistent with rapid disease progression.
So, over the last period not only have I been trying to recover from hospitalisation but also with the cancer advancing.
After taking a walk this morning for a trim at the hairdressers I returned in one piece and felt reasonably OK. Then Kitten returned and we had something to eat and once again I became hot and dizzy and had to rest.
The fact is that the cancer is not given me the respite that I wished for, instead it is taking every opportunity to grasp hold of me harder and it seems that there is little that I can do. It does seem that my body is determined to go downhill faster than Ski on Sunday. I just don't understand why after being strong for such a long period of time. It is a year since diagnosis on 9th February and I guess that it is the last couple of months that the decline has taken place i.e. since the disease has become metastatic.
The Marsden have suggested that they cannot offer trial treatment because I am not consistently well enough. The pathway from here seems to be to get the Macmillan nurses to get me to a position where I am as comfortable as possible.
It isn't the news that I want to hear, but if it is the truth then it must be heard.
Macmillan are amazing and they will help you rest, perhaps you shouldn't be pushing so hard and burning what few calories you have retained but what do I know. Let us out here do the pushing for you, we're all wishing and hoping really hard that there will be a small let up for you and you can find some quality time. We won't stop Swordfish, promise.
ReplyDeleteDiana
Hi Rumps
ReplyDeleteIt is so important to get yourself in as good a place as you can so that the time you have is not wasted, use Macmillan for that, they are wonderful. This isn't what any of us want to hear for you either.
Hopefully when you feel more comfortable it will give you a bit of a boost.
Hang on in there Rumps, we are all out here rooting for you.
My very best wishes also to the amazing stalwart Kitten. I wish and I hope that you get your respite.
Changeling x
Reading the above is difficult enough, but it must be extremely difficult to hear, process and deal with.
ReplyDeleteI wish / hope that things improve and allow you some of the quality time we all take for granted.
Keep positive,
Mick
Rumps
ReplyDeleteThanks for the email, I thought I would try to post a comment on here. Obviously not what any of us wanted to hear. You are in our hearts, and our prayers. I hope that you find the strength to keep being as positive as you are. An example to us all, and someone who your whole family can be justifyably proud of.
Paul The Banker
It saddens me to read that you feel your condition is worsening, but the only thing I can say is that I admire your courage Rumps.
ReplyDeleteBlueTrin
Hello Swordfish, do not despair...you are coming on so well compared to a week ago...get back on that ski lift and you will soon be heading up the mountain again.... we will start with Snowdon !!!! ....here comes Swordfish "the eagle" .....well done!!! Love to you all as always Lou & Stu xxx
ReplyDeleteRumps,
ReplyDeleteYour spirit is a credit to all
Gl as always
stm