When attending clinic it is not unusual to see a different registrar each time. I was lucky with my initial chemotherapy where we developed a consistency of usually being seen by the same doctor.
The level of experience can vary between the registrars and last time, although the doctor was thorough, thoughtful and informative I thought that some of her comments were a little naive.
In particular I though that the comment about expecting me to be eating between 3 and 4 thousand calories a day with a red raw oesophagus to be a little ambitious.
My thoughts were backed up by my meeting today. As well as being seen by yet another registrar there was also one of the cancer specialist nurses present. I took them through exactly where I am at and explained that even swallowing my own saliva could be excruciating at time.
I told them that I didn't mind dealing with the pain because it was anticipated that it would only be temporary but want to deal with concerns that the hospital had expressed about weight loss.
They sided with the viewpoint that I had previously held which was just to get through the current phase and then concentrate on getting the weight back on.
The cancer nurse added weight by say that my insides would just be a raw mess at the moment, so my discomfort was normal and understandable.
Apparently more oral morphine is the way to go. It is the strongest soluble thing at my disposal.
They have also given me some different protein shakes to try. These ones should be less acidic.
All this is much more assuring. It is better to know that my discomfort is not a wild deviation from the norm and that I can drop the mindset of battling with my weight. I will eat what I can for now and be done with it.
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